SHARING EPILEPSY WITH YOU (1)
- By Austin D`Souza

This is a short story about my myself and my experiences as an Epileptic patient suffering from Complex Partial seizures.

I was a happy go-lucky child right from the beginning. I had always dreamt of becoming something extraordinary, but fate willed otherwise. In the year 1995 there was a sudden twist to my playful and that was Epilepsy. Initially I never knew that I was suffering from epilepsy because the attacks were minor and I never lost consciousness nor did I fall down. The only thing that used to happen was to stare at whatever I saw without blinking. This was not known to my parents, as I myself never knew that his was Epilepsy. But one fine day in November 95 my father himself saw this when we were dining together, I was then taken to my doctor. After a few tests he diagnosed that I had Epilepsy.

As the days passed the attacks became more pronounced where I used to lose consciousness and fall down. Soon I was taken to NIMHANS and was referred to some well-known Neurologists. In spite of all these I attended my plus two classes without any hesitation or fear. Even though, there were many attacks during class hours, there was nothing to worry , as my classmates never felt bad about this nor did they stay away from me. One thing I observed during such attacks was that, people around used to give keys or insert a metal spoon into my mouth. One thing I wish to say to an Epileptic Patient or their parents is that no one can prevent or stop attacks by such measures. I have told many people not to do this to me when I had attacks. In my case medicines were of very little help, in spite of my taking them regularly for over 5 years. My doctor had come to the conclusion that surgery was the only way out, and as a result, I was admitted to NIMHANS on 4th January 2001. Before the surgery underwent various tests such as EEG, MRI, Video-Telemetry, Neuropsychology etc etc. After this, the surgeon operated upon me on 1st February 2001. After the healing of the wound the stitches were removed and I was discharged soon. The moment I came out of the hospital I felt a great sigh of relief and everything seemed fresh and new to me after a gap of nearly 5 ½ yrs. I really wish to say that surgery has changed my life completely and has put me back into my original life after 5 ½ yrs of suffering. In fact I had never though that surgery. In fact I had never even thought that surgery would be of such a great help to me. Though I continue to take medicines, none of my family members are worried about me as they know that I am completely free from epilepsy and I am continuing medicines only because of the doctor's advise. Presently I am not taking medication for epilepsy and know that I will stop it in about a year or so. Finally I would like to convey some important points to epileptic patients, which I learnt from the Epilepsy Association
.

Source : Indian Epilepsy Association, Newsletter - Bangalore Chapter (Oct 2001)