It is often
said that when you start getting negative thoughts, you should
consciously bring to mind pleasant experiences. I just have
to think of members of our support group Samoan and I am filled
with joy.
My life, with
active epilepsy , has been very painful. Since childhood ( 2.5
yrs) I have been having seizures. At one time, I used to get
15 - 16 complex partial seizures a day. When I was studying
in the 8th standard I had a severe attack in school and was
immediately admitted to a Nursing Home where I had a CT Scan
, X - ray, EEG and MRI. All reports were normal . Then I had
the tension of appearing for the 10th Board exam. With a lot
of effort I cleared this exam and started a degree course in
Commerce. I could not cope with the same as the medium was English
and I come from a Marathi speaking background. I then learnt
typing, fabric painting and flower making.
I got to know
about the Support Group Saman from Dr. P U Shah. I joined it
immediately and then started gaining confidence in myself. At
first, mom used to accompany me to the E-cell our epilepsy center.
After she saw others with epilepsy traveling on their own, I
too was given permission. I always carry an identity card and
that has helped whenever I was on my own and had a seizure.
Samoan members are most supportive of my work. I get orders
for cards and flowers from doctors as well as other members.
Our motto ' God helps those who help themselves ' is a constant
reminder to keep putting in effort, to help myself.
Fortunately
since July 2001 my seizures have stopped something my family
would never have imagined, but hoped for, at the time I was
getting 15 seizures a day. I do feel that epilepsy in my life
has a purpose. After all, I would not have met wonderful people
like Dr. Pravina Shah and Dr.Rash Shah, If it weren`t for epilepsy
! I think of them and my heart fills with love !.
Source : Sharing Experiences of Epilepsy
with You, Aug 28, 2004. Taiwan